Welcome to Our Blog
Welcome.
Our purpose for this blog: To FREELY GIVE YOU INFORMATION and resource links we find while researching for our own health and that of our family and friends.
We also want to try to warn you of some medical, insurance, government agencies’ practices that made it hard for our loved ones to get the diagnoses and help they deserve.
We are NOT SELLING ANYTHING, NOT AFFILIATED WITH ANY OF THE RESOURCES HEREIN REFERENCED, NOT A COMMERCIAL SITE. So, relax. We are motivated by desire to help people find quality of life and health resources and avoid THE UNNECESSARY MISERY OUR FRIEND SUSAN MYTKO, my sister and MILLIONS of others, HAVE BEEN MADE TO SUFFER DUE TO MEDICAL INEPTITUDE, MALFEASANCE AND MISFEASANCE BY OFFICIALS, CORPORATE EXECUTIVES, UNIVERSITY RESEARCH PERSONNEL, INSURANCE COMPANIES, A SO-CALLED MEDICAL SOCIETY, AND THE MEDICAL OLIGARCHY, ALL OF WHOM TOGETHER ARE RULING OVER OUR HEALTH SYSTEMS TO THE DETRIMENT OF THE PUBLIC WEAL
In OTHER WORDS, WE’RE SIMPLY TRYING TO INFORM YOU, WARN YOU, AND POTENTIALLY PROTECT YOU FROM HARM.
Our content and links may save you or someone you care about unnecessary delay in getting a correct diagnosis, and needless suffering should you fall victim to Lyme disease, adrenal exhaustion, chronic fatigue syndrome, multiple sclerosis, migraines, psoriasis, Crohn’s disease, gluten intolerance, Celiac disease, IBS (irritable bowel syndrome), adult onset diabetes, and potentially other chronic maladies (chronic, deep-seated disordered conditions in the body).. We also have posted here a resource for many rare difficult to diagnosis diseases. As you become informed by the data links shared here, you may avoid the potentially devastating pitfall of accepting a misdiagnosis as an immutable fact without further investigation.
Among the friends of your friends and family may be people you don’t know personally who may need some of this information right now or in the future, and that is why we recommend you share this link. We sincerely hope you and your family and friends never need any of this information. You’ll see why as you explore our content.
We are not professional bloggers, nor are we professional fund-raisers. We’re just sharing things we’ve researched or learned, personally or through the experiences our family members have had in the medical industrial complex. This site is temporary while we have our Saving Susan Mytko Heroes. pages up @ Go Fund Me trying to help Susan Mytko with desperately needed medical support. If you can identify with Susan’s situation on some human level or you find value in some of the information on this blog, please donate to Susan Mytko’s medical emergency. You can click on the donate button here or read her detailed story at Go Fund Me by the search title of Saving Susan Heroes, Join the Team!, or by searching her full name, Susan Mytko. Thanks for your consideration.
Susan went more than 2 years with severe Migraines and then developed seizures and paralysis due to the fact 21 doctors and 6 hospitals failed her. None of those medical “professionals” diagnosed her Lyme disease. That delay initiated MCAD (mast cell activation disease), which has caused her indescribable suffering and total financial devastation.
That’s why we decided to do this blog in the hope we might share information that could help someone get a faster diagnosis for Lyme or indeed a diagnosis for MCAD which can be triggered by any serious infection or trauma. Please note, we all have mast cells as an integral part of our own immune systems.
When we take down Susan’s Go Fund Me pages, we probably won’t maintain this blog, so copy and create a file of any resources you’d like to have for possible future reference, even if you’re perfectly healthy now. You never know what the future holds for you, your family, and your friends or their families and friends. We’ll do occasional posts, but not every day or necessarily every week, just from time to time as we learn more informative sites from which you might benefit.
You may want to forward some of the information and resource links posted here to a friend whose family member or friend starts having weird symptoms and can’t seem to find a doctor who can give a correct diagnosis.
Many points expressed here may be controversial, however, they in no way reflect on Susan personally. Indeed, she may disagree with some of our statements. She’s a much kinder and gentler soul than I am, but this blog is my project. My motives are to help other people who may feel like they have gotten little respect or help from doctors while lost in the confusing maize that is our modern medical industry.
Our Disclaimer: We are not medical practitioners. The content shared here is for educational and informational purposes only. The opinions posted here are derived from personal experiences in my family and those of doctors we quote or whose books and You Tube videos we reference. WE are NOT giving out medical advice. We are NOT in any way attempting to diagnosis or treat any disease. Use your own best judgement when considering information of any medical nature. We are not responsible for any opinions you form from content or links; your decisions and actions are entirely your own
Sincerely,
The editor, Team member of Saving Susan Mytko Heroes.
As you will see when you thoroughly explore our content— Without having taken it upon themselves to study and research extensively AFTER MEDICAL SCHOOL “rare diseases” with complex clusters of symptoms that aren’t even universally similar from one patient to another, doctors CANNOT DIAGNOSE MANY RARE DISEASES. This applies to physicians on staff at hospitals as well. This opinion is confirmed by Dr. Lawrence Afrin and Dr. Anne Maitland.
It may you the patient or parent of a sick child that must become a type of medical research detective, a Sherlock Holmes, to be equipped to search for the rare physician with clinical diagnostic and treatment experience of your hard-to-diagnose “mystery disease.” You have our deepest sympathy and understanding.
EDITORIAL #1:
Initially, we thought to focus on Lyme disease and mast cell activation disease, and while we endeavor to do that, upon further reflection, I decided to expand our objectives into health, nutrition, and avoidance of chronic diseases in general. Since we’re not promoting any one person’s philosophy or any products from which we derive any financial reward, we are at liberty to look at all things pertaining to the epigenetics of health as we have time.
Without having taken it upon themselves to study and research extensively AFTER MEDICAL SCHOOL, physicians CANNOT BE EXPERTS IN NUTRITION, SINCE MAINSTREAM MEDICAL SCHOOLS DO NOT TEACH IT IN DEPTH, and the few that teach nutrition at all don’t believe it has anything to do with the prevention, onset, or progression of disease. That’s idiocy! I cite scurvy, rickets, goiter, and pellagra. In case you don’t know, those and other conditions have long been known in medicine to be the direct result of one each nutritional deficiency. Scurvy ravaged sailors for centuries until vitamin C containing foods were mandated as part of crews’ rations. Pellagra is a result of inadequate vitamin B-3 (niacin). Ricketts was common in malnourished children in the early 20th century due to inadequate vitamin D which could come from cod-liver oil or adequate exposure to sunlight, or later vitamin D enriched milk. In fact, the FDA promulgated the adding of vitamin D (enrichment) to combat identified nutrient deficiencies. Beginning in the 1930’s and 1940’s as nutritional deficiencies began to be studied and recognized, the government set standards for the “enrichment” (adding of nutrients) to staple foods. Among those nutrients were thiamine, niacin, riboflavin, folic acid, and iron, and iodine. The history of government involvement in the matter of to enrich or not to enrich foods and to what extent, etc., is a checkered one. We’re talking about huge bureaucracies here after all.
Goiter has historically been demonstrated in regional populations as a lack of adequate dietary iodine. Quoting from an article published in the Columbia Dispatch entitled, Iodized salt changed life for those in the ‘goiter belt’, pub. Aug 12, 2008. “In the late 1800’s goiters were rare in one area of West Virginia because locally produced brown salt had sufficient iodine. By 1922 when that salt had been largely replaced by white salt mined in Ohio and Michigan, about 60% of the population had enlarged thyroids.” It’s an interesting article worthy of a quick read. Quoting the same article, “Iodine deficiency essentially was eliminated in the United States by the use of iodized salt. However, with people cutting back on salt intake, it is staging a comeback, increasing from less than 1 percent of the population in the 1970’s to about 7 percent today.”
Mainstream doctors and many physicians on You Tube keep urging people to reduce salt intake. My take on that advice is that it’s inadequately explained. If you don’t take in iodized salt, where are you getting iodine in your food? The Japanese eat a lot of seaweed and it contains varying amounts of iodine. Your thyroid needs iodine to perform and stay healthy. For people whose diets consists almost entirely of processed and packaged foods they are probably getting a lot of salt, excepting the low salt versions. I don’t know if processed foods manufactures use iodized salt or non-iodized.
For those of us who eat virtually nothing that comes out of a factory package, box, or can, and who eat whole foods from the fresh produce section, local farmers’ markets, and our family gardens, we’d be getting very little salt. Besides, I bow to the experience of Dr. Joel Wallach, soil scientist, veterinarian extraordinaire, post-doctoral level pathologist, and naturopath, macro and micro-nutrient educator par excellence on the matter of salt. He says we can salt our food to taste and if it’s not iodized, we can take a micro level of iodine as a supplement. Pink Himalayan salt is not iodized so far as I’ve seen indicated on the labels. So if our taste buds haven’t been numbed by too much highly salted processed, packaged food products, we probably won’t salt too much.
AS ONE EMINENT DOCTOR WHO HAD HIS UNDERGRADUATE DEGREE IN HUMAN CELLULAR BIOLOGY AS IT PERTAINS TO NUTRITION AND HEALTH said, “In medical school, they beat it out of my head. And I figured, they must be the experts, so I believed them. However, after seeing the data from my own research on human metabolic disorders and non-alcoholic fatty liver disease, I was waking up at night in a cold sweat realizing I had been practicing medicine wrong for 35 years. Then I had to go back and refresh my mind on all that I’d learned in undergraduate school on human nutrition and its correlation to health and disease.” [statements I’ve quoted from memory from videos by Dr. Robert H. Lustig, MD., endocrinologist, Professor of Pediatrics in the Division of Endocrinology, University of California, San Francisco, specializing in neuroendocrinology and childhood obesity. He is director of UCSF’s WATCH program (Weight Assessment for Teen and Child Health), founder of the Institute for Responsible Nutrition, a non-profit. In 2013 he earned a Master of Studies in Law degree from U.C. Hastings College of Law. He has authored over 85 peer-reviewed articles, and 30 reviews, author of Fat Chance, and the Hacking of the American Mind, international speaker. For a biography of part of his academic, medical, and scientific profile go to www.profiles.ucsf.edu. His education and accolades have continued beyond what is included there. What’s on UCSF’s profiles page is impressive enough, but since that was posted he has obtained the law degree I mentioned above, and started the non-profit referenced above.
Like anyone who goes against politically powerful and unimaginably wealthy establishments who have more political influence in governments and official health policies around the world than all the conscientious independent researchers, physicians who are nutritionally literate, and billions of ordinary human beings combined, Dr. Lustig has many critics. So, before you believe bloggers’ criticisms of Dr. Lustig’s knowledge or science background in human diet and metabolism, read his profile and listen to several, not just 1 or 2 of his videos on You Tube. Ask yourself if those who criticize his work have helped obese children and adults as Dr. Lustig has and continues to do. Also ask yourself if the critics are behind the scenes operatives being paid or rewarded by the establishments profiting from the world’s people eating and drinking processed foods. Are critics really being paid by industries profiting from the world-wide obesity epidemic and the billions in pharmaceuticals prescribed and surgeries performed on obese people and the epidemic of type II diabetics which is now world-wide? One blog I read criticized Dr. Lustig based on one 90-minute lecture. The critic’s arguments against Dr. Lustig’s single lecture was full of holes you could drive a truck through. No scientists work can be judged based on one lecture, since no one can present everything they know on a subject and all supporting data in a single lecture, or single book for that matter. If you researched for a hobby as I’ve done for years, you’d soon learn that critics of people who are actually putting their reputations and professional careers on the line to help people whom the mainstream establishment institutions are failing are most loudly criticized by paid operatives and others who stand to benefit by maintaining the establishment status quo. Critics front for the sugar, fructose industry, and/or transnational agribusiness, i.e., commercial food production industry—specifically producers of processed foods and sweetened beverages, and poisoned foods in general. Critics of good doctors are part of the mainstream establishment medical industry and don’t welcome anyone’s information that might threaten their lucrative incomes. I’m sure I’ll talk much more about this in coming months.
As unbelievable as it may be in the 21st century, many diseases can be ridiculously hard to get correctly diagnosed and treated in a way that is truly helpful. You can find an abundance of evidence from people’s experiences being chewed up and spat out by the establishment medical industry on You Tube. And powerful evidence presented by caring physicians and scientists who have had an epiphany. Some physicians have changed their medical practice, where possible (authorities keep threatening with censure and medical license cancellations).
Usually it’s a serendipitous event or personal health crisis in themselves or their immediate family that initiates their awakening to shocking realizations that our entire officially sanctioned nutritional and medical institutions are corrupted by money and career path self-interested physicians and officials. Facts are that millions of people are damaged and many die as a direct result of that corruption. There’s an over-abundance of evidence to support these statements as unsettling as they may be.
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